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June 28, 2000

Informed Decisions for Extremely Low-Birth-Weight Infants—Reply

Author Affiliations

Phil B.FontanarosaMD, Deputy EditorIndividualAuthorStephen J.LurieMD, PhD, Contributing EditorIndividualAuthor

JAMA. 2000;283(24):3201-3202. doi:10.1001/jama.283.24.3198

In Reply: We thank Ms Culver et al for their thoughtful reflections on our study. While we cannot comment specifically on their personal experiences, we would like to address several of the points they raise.

Some of our comments appear to have been misinterpreted. We did not conclude that parents are "willing to accept life-sustaining care" for all ELBW infants. Rather, we wrote that parents were "more accepting of the severely disabled health states than HPs [health care professionals]." What this study did not do, and what needs to be done in future research, is to explore the processes by which parents and health care professionals make decisions and the bases on which they do so.

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