[Skip to Content]
[Skip to Content Landing]
Citations 0
February 11, 1998

Defining and Measuring Quality of Life in Medicine

Author Affiliations

Margaret A.WinkerMD, Senior EditorIndividualAuthorPhil B.FontanarosaMD, Senior EditorIndividualAuthor

JAMA. 1998;279(6):429-431. doi:10-1001/pubs.JAMA-ISSN-0098-7484-279-6-jac81007

To the Editor.—Drs Leplége and Hunt1 provide an incomplete view of the current state of the science of HRQL measurement. We disagree with their pessimism about the value of aggregated and normative outcome measures. Health outcomes researchers must specify the conceptual model underlying an instrument; the patients' perspective is critical in the development of HRQL measures. We agree that patients are the main source for information about the content and importance of domains to ensure that a quality-of-life measure adequately reflects the impact of disease on functioning in everyday life and well-being. Most current instruments start with eliciting concerns from patients (by qualitative methods or focus groups) to determine the relevant domains.

First Page Preview View Large
First page PDF preview
First page PDF preview