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October 5, 2011

Evidence-Based Practice and Health Advocacy Organizations

Author Affiliations

Letters Section Editor: Jody W. Zylke, MD, Senior Editor.

Author Affiliations: MassGeneral Hospital for Children, Boston, Massachusetts (Dr Perrin) (jperrin@partners.org); Louisiana State University Health Sciences Center, New Orleans (Dr Kolls); and Nationwide Children's Hospital, Columbus, Ohio (Dr Coury).

JAMA. 2011;306(13):1443-1445. doi:10.1001/jama.2011.1404

To the Editor: The Commentary by Dr Rothman1 stated that some health advocacy groups minimize the value of evidence in health care decision making. This suggestion neglects the role of such groups in advocating for and supporting research to provide better evidence. Much of the successful US health research endeavor reflects vigorous advocacy by consumer groups to apply the best science to their areas of concern.2 Clinical research networks, exemplified by the Pediatric Oncology Group, the Cystic Fibrosis Foundation Network, and the Autism Treatment Network, represent successful efforts supported by consumer advocacy groups to expand the evidence for care and develop evidence-based practice guidelines.3