All across the United States and around the world, at hospitals, in commercial laboratories, and at universities, data on the genomes of millions of patients and research participants are piling up. Many scientists and clinicians believe this vast and growing trove of data may help them better understand the role of genetics in health and disease. But to do this, they must overcome the technical, legal, and ethical challenges that come with amassing and using data collected on millions of individuals by a host of different organizations in countries with varying laws about such research.
Kuehn BM. Alliance Aims for Standardized, Shareable Genomic Data. JAMA. 2013;310(3):248-249. doi:10.1001/jama.2013.8327