Author Affiliations: Center for Children with Special Needs, Children's Hospital and Regional Medical Center, and Department of Pediatrics and University of Washington School of Medicine, Seattle.
Parents of chronically ill children face unusual challenges in the current US health care system. The system is an odd mix of public and private insurance. Children are covered either through their parents' employment-based insurance or through public insurance programs (Medicaid) that require meeting some type of financial means test. There is little health insurance support other than Medicaid for those individuals who lack insurance as a result of partial employment or for those who have employment-based insurance that provides inadequate coverage for the employed individual or family members.1
Neff JM. Paid Family Leave for Parents of Chronically Ill Children. JAMA. 2008;300(9):1080-1081. doi:10.1001/jama.300.9.1080