To the Editor: Mr Schaefer and colleagues1 suggested that society should take a new approach to thinking about participation in research—that all individuals should participate as volunteers in research unless they have a good reason not to. While standards around research ethics increasingly respect the rights of individuals and communities, the authors argue a perspective within which the true history of research that individuals and communities have experienced appears disregarded. Ultimately, we find their proposal antithetical to the direction in which standards around biomedical research have progressed.
Folayan MO, Mutengu-Kasirye L, Calazans G. Participating in Biomedical Research. JAMA. 2009;302(20):2200-2202. doi:10.1001/jama.2009.1720