In the face of increasing calls for more transparency about and regulation of genetic testing in the United States, the National Institutes of Health (NIH) announced in March that it is creating a new voluntary genetic test registry that may soon help physicians and patients select and interpret genetic tests.
Test makers can voluntarily submit information about the availability, validity, and clinical relevance of their products to the registry, which is expected to be available in 2011. The registry will be publicly searchable, allowing physicians and patients access to an array of information about genetic tests.
Kuehn BM. NIH Launching Genetic Test Registry. JAMA. 2010;303(17):1685. doi:10.1001/jama.2010.493