Shared decision making is increasingly accepted as an optimal model for defining overall goals of care and making major health care decisions affected by the values and preferences of patients.1,2 For patients with advanced illness or who are incapacitated, families and other surrogates are often asked to participate in this collaborative process. Meaningful participation in health care decision making requires that these surrogates have sufficient information to weigh the potential benefits and burdens of treatment, including an understanding of likely outcomes.
Azoulay E, Kentish-Barnes N, Nelson JE. Communication With Family Caregivers in the Intensive Care UnitAnswers and Questions. JAMA. 2016;315(19):2075-2077. doi:10.1001/jama.2016.5637