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To the Editor.—
The Amyotrophic Lateral Sclerosis Society of America and the Department of Neurology of the University of Southern California maintain a national amyotrophic lateral sclerosis (ALS) case registry. This is the first truly national ALS case registry effort ever conducted. We are attempting to collect information on all available ALS patients, which will enable future meaningful research into the cause, cure, and prevention of ALS. In addition, the ALS Society maintains an information fact sheet program to provide practical, readily available, and medically correct information to ALS patients and their families on many of the aspects of the management of ALS disease. In addition to funding ALS research, the ALS Society wants to help ALS patients and their families to cope more adequately with their disease. Information will be provided on request to any medical practitioner who would forward it to his patients or to the patients or
Varon MI. National Amyotrophic Lateral Sclerosis Case Registry. JAMA. 1979;241(22):2379. doi:10.1001/jama.1979.03290480013006