The National Institutes of Health, through the National Institute for Arthritis, Musculoskeletal and Skin Diseases, is sponsoring a National Registry for Ichthyosis and Related Disorders. The goals of the Registry are to promote the search for basic defects, improve methods of diagnosis, and develop effective methods of treatment and/or prevention of these disorders. Diagnosis of affected individuals will be based on specific, listed clinical and histological criteria and will be confirmed by determination of steroid sulfatase activity where indicated. Investigators and practitioners caring for individuals afflicted with these disorders or desiring access to the Registry database are encouraged to contact the National Registry for Ichthyosis and Related Disorders, Department of Dermatology, University of Washington, Box 356524, Seattle, WA 98195-6524; telephone: (800) 595-1265.
National Registry for Ichthyosis and Related Disorders. Arch Dermatol. 1999;135(7):803-a-803. doi:10-1001/pubs.Arch Dermatol.-ISSN-0003-987x-135-7-dnn079901