edited by Karen Ball Fisher, 288 pp, $10, ISBN 0-9670484-1-9, Mount Freedom, NJ, Sturge-Weber Foundation, 2003. Available through The Sturge-Weber Foundation (email@example.com).
This guide is a comprehensive resource for families of children with Sturge-Weber syndrome. It is also a valuable guide for health care professionals who care for children or adults with Sturge-Weber syndrome. The book begins with the story of a child with Sturge-Weber syndrome, the editor's daughter Kaelin, and includes many other touching personal experiences. I am hopeful that parents of children with Sturge-Weber syndrome will feel less isolated by reading these emotion-filled individual experiences.
Chamlin SL. Sturge-Weber Syndrome: The Resource Guide for a Reason, a Season, and a Lifetime. Arch Dermatol. 2004;140(2):247-248. doi:10.1001/archderm.140.2.247-b