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To the Editor.—
The Laboratory for Investigative Dermatology at The Rockefeller University (New York) was recently awarded a five-year contract by the National Institute of Arthritis and Musculoskeletal and Skin Diseases to establish a National Epidermolysis Bullosa (EB) Registry. The Registry, which is headed by D. Martin Carter, MD, New York, is comprised of a Data Coordinating Center (DCC) that is based at The Rockefeller University Hospital, four geographically dispersed Clinical Centers, and a Steering Committee. The DCC is responsible for the overall operations of the Registry. The Clinical Centers are headed by E. A. Bauer, MD, Washington University School of Medicine, St Louis; J. D. Fine, MD, University of Alabama at Birmingham; V. P. Sybert, MD, University of Washington School of Medicine, Seattle; and D. M. Carter, MD. These Clinical Centers are responsible for patient enrollment in their cachement areas, patient examinations, and transmitting information to the DCC. The
Carter DM. Announcement of the National Epidermolysis Bullosa Registry. Arch Dermatol. 1987;123(4):423-424. doi:10.1001/archderm.1987.01660280023003