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Article
April 1987

Announcement of the National Epidermolysis Bullosa Registry

Author Affiliations

Laboratory for Investigative Dermatology The Rockefeller University 1230 York Ave New York, NY 10021-6399

Arch Dermatol. 1987;123(4):423-424. doi:10.1001/archderm.1987.01660280023003

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Abstract

To the Editor.—  The Laboratory for Investigative Dermatology at The Rockefeller University (New York) was recently awarded a five-year contract by the National Institute of Arthritis and Musculoskeletal and Skin Diseases to establish a National Epidermolysis Bullosa (EB) Registry. The Registry, which is headed by D. Martin Carter, MD, New York, is comprised of a Data Coordinating Center (DCC) that is based at The Rockefeller University Hospital, four geographically dispersed Clinical Centers, and a Steering Committee. The DCC is responsible for the overall operations of the Registry. The Clinical Centers are headed by E. A. Bauer, MD, Washington University School of Medicine, St Louis; J. D. Fine, MD, University of Alabama at Birmingham; V. P. Sybert, MD, University of Washington School of Medicine, Seattle; and D. M. Carter, MD. These Clinical Centers are responsible for patient enrollment in their cachement areas, patient examinations, and transmitting information to the DCC. The

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