Special Article
May 2000

National Institutes of Health Consensus Conference: Tuberous Sclerosis Complex

Author Affiliations

From the Division of General Internal Medicine and Health Services Research, Department of Medicine, University of California, Los Angeles (Dr Hyman), and the National Tuberous Sclerosis Association, Landover, Md (Dr Whittemore).


Copyright 2000 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.2000

Arch Neurol. 2000;57(5):662-665. doi:10.1001/archneur.57.5.662

In July 1998, the National Institutes of Health sponsored a consensus conference of international experts to review the literature on tuberous sclerosis complex (TSC). First described in the 1800s, this multiorgan disease has wide-ranging effects on the body, including the brain, kidneys, eyes, and heart. Tuberous sclerosis affects an estimated 40,000 Americans and approximately 2 million people worldwide.1 The panel provided recommendations on revised diagnostic criteria and surveillance protocols for affected individuals.2 Areas for future research were highlighted.

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