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When the diagnosis of Usher's syndrome is made, the patients and their families want to learn as much about the condition as they can. The book Usher's Syndrome: What It Is, How to Cope, and How to Help meets that need.
The book is written by a team of professionals with experience in the field of deaf-blindness. The team includes an ophthalmologist, a nurse, a psychologist, and two educators. The first chapter presents interviews with six patients (three men and three women), ranging in age from 18 to 46 years. Their personal accounts give insight into the task of coping with profound disability—the double handicap of hearing and vision impairment. The remaining chapters deal with medical aspects of Usher's syndrome, communicating the diagnosis, psychological adjustment to the diagnosis, educational concerns, employment and vocational rehabilitation, recreation, and social interaction.
"... written by a team of professionals with experience in the field of
Liberfarb RM. Usher's Syndrome: What It Is, How to Cope, and How to Help. Arch Ophthalmol. 1989;107(11):1578. doi:10.1001/archopht.1989.01070020656017