edited by William I. Cohen, Lynn Nadel, and Myra E. Madnick, 473 pp, $27.50, ISBN 0-471-41815-3, New York, NY, Wiley-Liss, 2002.
Down syndrome is not only a medical condition but also a politicalcondition. Too often, people with trisomy 21 have their basic human liberties constrained, their preferences ignored, and their needs unmet, especially as they transition to adulthood. Certainly, over the course of the 7 generations that separate us from Victorian England and John Langdon Down's description of his eponymous syndrome, tremendous progress has been made on both the medical and the political fronts, but much more remains tobe done.
Feudtner C. Down Syndrome: Visions for the 21st Century. Arch Pediatr Adolesc Med. 2003;157(5):494. doi:10.1001/archpedi.157.5.494