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The first of its kind, this patient-family-oriented book is edited and largely written by David Orenstein, MD, with input from several other health professionals. Dr Orenstein has extensive experience with cystic fibrosis (CF) as a care giver and CF center director and is a recognized expert on exercise and CF.
The book walks the patient or parent through the maze of state-of-the-art care for the patient with CF. Initially, there is a clear, upbeat presentation of the manifestations and meaning of this complex disease. Genetics, meaningful clinical statistics, vocabulary (emphasis on understanding medical jargon), daily life, complications, and longevity are all clearly reviewed.
The reader is encouraged to be active, to seek to fulfill his or her own potential, and to lead a full life. Resources, costs, research, and hopes for a cure are well detailed. Seminal advances in 1989 with respect to identification of
McCOY KS. Cystic Fibrosis: A Guide for the Patient and Family,. Am J Dis Child. 1990;144(8):927. doi:10.1001/archpedi.1990.02150320091034