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The Pediatric Forum
April 2007

Disabling Children With Disabilities

Author Affiliations

Copyright 2007 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.2007

Arch Pediatr Adolesc Med. 2007;161(4):419-420. doi:10.1001/archpedi.161.4.419-a

The history of the medical maltreatment of and experimentation on people with developmental disabilities has been so common that it would be easy to dismiss the work of Gunther and Diekema,1 reported in their article “Attenuating Growth in Children With Profound Developmental Disability,” as just one more tragic example.

As a person with cerebral palsy who was not supposed to be able to walk, talk, or think but who has led his profession for 25 years and is married to a woman whose body is extensively scarred by failed experimental surgeries that were supposed to ameliorate her cerebral palsy, it would be even easier to dismiss their article with intense anger. That was my first reaction and the universal reaction of my colleagues in the disability movement.

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