During my 45 years of pediatric practice and teaching, I have been involved in the care of numerous patients with serious disabilities, but only in the past 5 years have I really learned of the challenges these children and their families face outside clinical settings. My epiphany, not surprisingly, came from personal experience: I adopted a son with special needs who attended a birth-to-3 developmental center here in Seattle, Washington, called the Boyer Children's Clinic. My son's needs—speech therapy for a cleft palate—were relatively minor and eventually resolved. The disabilities affecting most of the other children attending the Boyer clinic, however, were severe and permanent.
Bergman AB. The Right of Children With Disabilities to Have Fun. Arch Pediatr Adolesc Med. 2007;161(11):1104-1105. doi:10.1001/archpedi.161.11.1104