Phil B.FontanarosaMD, Deputy EditorIndividualAuthorStephen J.LurieMD, PhD, Contributing EditorIndividualAuthor
To the Editor: In their article on conflicts
regarding decisions to limit treatment, Dr Goold and colleagues1
do not mention a scenario that I have faced a number of times in caring for
patients with chronic neurological diseases. This might be called the proud caregiver syndrome. The caregiver's entire life is
centered around the patient. The caregiver gains respect, pride, a sense of
noble self-sacrifice, service, and accomplishment from his or her caregiving.
Life would become meaningless without the individual to whom he or she can
administer care. The decision to continue all-out efforts is based on the
need to continue the caregiver role, rather than on the patient's wishes or
Caplan LR. Handling Conflict in End-of-Life Care. JAMA. 2000;283(24):3199–3200. doi:10.1001/jama.283.24.3198
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