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A Piece of My Mind
September 12, 2012

A Path to Wholeness

Author Affiliations

A Piece of My Mind Section Editor: Roxanne K. Young, Associate Senior Editor.

Author Affiliations: Division of Neonatology, Department of Pediatrics (Dr Milstein) (jmmilstein@ucdavis.edu); Departments of Internal Medicine and Sociology and Center for Healthcare Policy and Research (Dr Paterniti), University of California, Davis; and Renaissance Society, Sacramento, California (Mr and Mrs Kovar).

JAMA. 2012;308(10):985-986. doi:10.1001/2012.jama.10425

In a recent talk on spirituality in medicine, I (J.M.M.) described an infant (Baby Rose) with trisomy 18, a myelomeningocele, and hydrocephaly. This infant girl had closure of the back defect as well as shunt placement within the first week of life, and then was sent home with her family. She experienced compassionate, loving care in that setting throughout the duration of her life of 19 days. During my presentation, I shared video recordings Rose's family had created, demonstrating the love that permeated their home.