In a recent talk on spirituality in medicine, I (J.M.M.) described an infant (Baby Rose) with trisomy 18, a myelomeningocele, and hydrocephaly. This infant girl had closure of the back defect as well as shunt placement within the first week of life, and then was sent home with her family. She experienced compassionate, loving care in that setting throughout the duration of her life of 19 days. During my presentation, I shared video recordings Rose's family had created, demonstrating the love that permeated their home.
Milstein JM, Kovar LB, Kovar LJ, Paterniti DA. A Path to Wholeness. JAMA. 2012;308(10):985–986. doi:10.1001/2012.jama.10425