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June 12, 2013

Patients' Responsibility to Participate in Decision Making and Research

Author Affiliations

Author Affiliations: Department of Internal Medicine, Yale University School of Medicine, and Yale University School of Public Health, New Haven, Connecticut (Dr Tinetti); and Department of Medicine, University of North Carolina School of Medicine, and University of North Carolina Gillings School of Global Public Health, Chapel Hill (Dr Basch).

JAMA. 2013;309(22):2331-2332. doi:10.1001/jama.2013.5592

Patient-centered care is defined by the Institute of Medicine as care that is respectful of patient preferences and in which patient values guide clinical decisions.1 Patient-centered care is not possible without patients and their caregivers playing a central role in care decisions and, importantly, in the research that informs those decisions. The American Medical Association's list of patient responsibilities suggests that patients request information or clarification about their health status or treatment when they do not fully understand their care, participate in decisions about diagnostic and treatment recommendations, and adhere to the agreed-on treatment program.2 These responsibilities are congruent with patient-centered care.