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Capitol Health Call
November 12, 2008

ALS Registry

JAMA. 2008;300(18):2110. doi:10.1001/jama.2008.578

A bill creating a national registry to collect data on amyotrophic lateral sclerosis (ALS or Lou Gehrig disease) was passed by Congress on September 23 (S 1382 [http://thomas.loc.gov]). President George W. Bush is expected to sign the legislation into law.

The national registry will gather information on patients with ALS and other motor neuronal disorders that may be confused with ALS or, in some cases, may progress to ALS.