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October 17, 2017

The Pathway to Patient Data Ownership and Better Health

Author Affiliations
  • 1Open Health Services, The MITRE Corporation, Bedford, Massachusetts
  • 2Scripps Translational Science Institute, La Jolla, California
JAMA. 2017;318(15):1433-1434. doi:10.1001/jama.2017.12145

Digital health data are rapidly expanding to include patient-reported outcomes, patient-generated health data, and social determinants of health. Measurements collected in clinical settings are being supplemented by data collected in daily life, such as data derived from wearable sensors and smartphone apps, and access to other data, such as genomic data, is rapidly increasing. One projection suggests that a billion individuals will have their whole genome sequenced in the next several years.1 These additional sources of data, whether patient-generated, genomic, or other, are critical for a comprehensive picture of an individual’s health.

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