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January 22, 2019

Social Determinants of Health in the Digital Age: Determining the Source Code for Nurture

Author Affiliations
  • 1Facebook Inc, Menlo Park, California
  • 2Stanford University School of Medicine, Stanford, California
  • 3American College of Cardiology, Washington, DC
  • 4Department of Medicine, University of Colorado School of Medicine, Denver
  • 5Departments of Medicine, Epidemiology, and Public Health, Yale School of Medicine, New Haven, Connecticut
  • 6Center for Outcomes Research and Evaluation, Yale New Haven Hospital, New Haven, Connecticut
JAMA. 2019;321(3):247-248. doi:10.1001/jama.2018.19763
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    1 Comment for this article
    Facebook wants to link social media data with clinical and health outcomes. What could possibly go wrong?
    Ellen Matloff, MS Genetic Counseling | My Gene Counsel, LLC
    Dear Dr. Abnousi,

    Before Facebook asks to link social media data with users' clinical and health outcomes, you've got a lot of work to do. The Facebook privacy breeches in general, and decisions around how/if to report and correct them, has left your users concerned. The privacy issues for those patients who trusted Facebook to house their private support groups has left patient communities not only concerned, but scared:


    Before you even consider asking health care providers or patients to share any more data with Facebook you need to prove to all of us that
    you are trustworthy.

    Ellen Matloff, MS, CGC
    My Gene Counsel