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February 20, 2019

What Is Needed Now to Improve Cardiovascular Clinical Registries in the Future

Author Affiliations
  • 1Duke Clinical Research Institute, Department of Medicine, Duke University School of Medicine, Durham, North Carolina
  • 2Deputy Editor, JAMA Cardiology
  • 3Department of Medicine, Stanford University School of Medicine, Stanford, California
JAMA Cardiol. 2019;4(3):201-202. doi:10.1001/jamacardio.2018.4946

Every day, people enter health care systems looking for answers to their health problems. Clinicians search for the right answer for the patients in front of them, often in a complex, dynamic clinical situation. In these scenarios, patients and clinicians expect that the evidence is clear and decision making will be sharp and incorporate the individual’s preferences and values for the best outcome. Unfortunately, this is often not the case because of uncertainty regarding choices, the evidence base, and the potential range of benefits or harms associated with both diagnostic and therapeutic decisions. To close this gap, the notion of learning through aggregated clinical experiences and clinical registries has been fundamental, dating back to the origins of the digital medical textbook.1