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Research Letter
October 7, 2020

Prevalence of Dermatitis Herpetiformis Within the iCureCeliac Patient-Powered Research Network—Patient Characteristics and Dietary Counseling

Author Affiliations
  • 1Department of Dermatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 2Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 3Biostatistics Analysis Center, Center for Clinical Epidemiology and Biostatistics, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 4Deputy Editor, JAMA Dermatology
JAMA Dermatol. Published online October 7, 2020. doi:10.1001/jamadermatol.2020.3431

Dermatitis herpetiformis (DH) is a cutaneous manifestation of celiac disease (CD). More than 90% of patients with DH have an associated gluten-sensitive enteropathy,1,2 yet only 20% of patients with DH exhibit classic gastrointestinal symptoms at time of initial diagnosis.1 Dermatologists may be the first to diagnose patients with CD via their DH. A paucity of nationwide data exists on the demographic characteristics of patients with DH and CD. Using a patient-powered research network (PPRN), we sought to (1) describe the prevalence of DH, (2) characterize the demographics of patients with DH and underlying CD, and (3) assess the extent of gluten-free diet (GFD) counseling received by patients with and without DH.

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