[Skip to Content]
[Skip to Content Landing]
Views 354
Citations 0
Research Letter
October 7, 2020

Prevalence of Dermatitis Herpetiformis Within the iCureCeliac Patient-Powered Research Network—Patient Characteristics and Dietary Counseling

Author Affiliations
  • 1Department of Dermatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 2Department of Biostatistics, Epidemiology and Informatics, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 3Biostatistics Analysis Center, Center for Clinical Epidemiology and Biostatistics, Perelman School of Medicine, University of Pennsylvania, Philadelphia
  • 4Deputy Editor, JAMA Dermatology
JAMA Dermatol. Published online October 7, 2020. doi:10.1001/jamadermatol.2020.3431

Dermatitis herpetiformis (DH) is a cutaneous manifestation of celiac disease (CD). More than 90% of patients with DH have an associated gluten-sensitive enteropathy,1,2 yet only 20% of patients with DH exhibit classic gastrointestinal symptoms at time of initial diagnosis.1 Dermatologists may be the first to diagnose patients with CD via their DH. A paucity of nationwide data exists on the demographic characteristics of patients with DH and CD. Using a patient-powered research network (PPRN), we sought to (1) describe the prevalence of DH, (2) characterize the demographics of patients with DH and underlying CD, and (3) assess the extent of gluten-free diet (GFD) counseling received by patients with and without DH.

Limit 200 characters
Limit 25 characters
Conflicts of Interest Disclosure

Identify all potential conflicts of interest that might be relevant to your comment.

Conflicts of interest comprise financial interests, activities, and relationships within the past 3 years including but not limited to employment, affiliation, grants or funding, consultancies, honoraria or payment, speaker's bureaus, stock ownership or options, expert testimony, royalties, donation of medical equipment, or patents planned, pending, or issued.

Err on the side of full disclosure.

If you have no conflicts of interest, check "No potential conflicts of interest" in the box below. The information will be posted with your response.

Not all submitted comments are published. Please see our commenting policy for details.

Limit 140 characters
Limit 3600 characters or approximately 600 words
    ×