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July 2007

Cutaneous T-Cell Lymphoma Epidemiology: Patients Providing the Power

Arch Dermatol. 2007;143(7):916-918. doi:10.1001/archderm.143.7.916

Cutaneous T-cell lymphoma (CTCL) is a term currently used for the classification of a variety of subtypes of T-cell lymphoma that primarily affect the skin.1 The initial use of the term CTCL, however, was coined by Edelson2 to describe the most common variant of CTCL, mycosis fungoides (MF), and its leukemic variant, Sézary syndrome (SS). In this editorial, the term CTCL will specifically refer to MF and SS, which is the subject of the current epidemiologic study of Criscione and Weinstock3 presented in this issue of the Archives. Because this study was funded by a grant from the Cutaneous Lymphoma Foundation (http://www.clfoundation.org), it represents a unique paradigm in clinical research: a population-based study made possible by advocates for the patient population under investigation.

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