This guide is a comprehensive resource for families of children with Sturge-Weber syndrome. It is also a valuable guide for health care professionals who care for children or adults with Sturge-Weber syndrome. The book begins with the story of a child with Sturge-Weber syndrome, the editor's daughter Kaelin, and includes many other touching personal experiences. I am hopeful that parents of children with Sturge-Weber syndrome will feel less isolated by reading these emotion-filled individual experiences.