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July 1995


Arch Dermatol. 1995;131(7):768. doi:10.1001/archderm.1995.01690190018002

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Announcement of National Registry.  The National Institute of Arthritis and Musculoskeletal and Skin Diseases, Bethesda, Md, is sponsoring a National Registry for Ichthyosis and Related Disorders. Diagnoses will be based on specific, listed clinical and histologic criteria and will be confirmed by determination of steroid sulfatase activity, where indicated. The goal of the registry is to promote the search for basic defects, improve methods of diagnosis, and develop effective methods of treatment and/or prevention of these afflictions. Investigators caring for individuals with these disorders or desiring access to the database are encouraged to write or call the registry for information at the following: National Registry for Ichthyosis and Related Disorders, Dermatology, RM-14, University of Washington, Seattle, WA 98195; telephone: (800) 595-1265.Call for Patients With Inherited Diseases of the Skin. We in San Francisco, Calif, as well as skin biologists in other cities are interested in finding the chromosomal location

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