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March 1976

Living With Hemophilia

Author Affiliations

Irvington On-The-Hudson, NY

Arch Intern Med. 1976;136(3):371. doi:10.1001/archinte.1976.03630030095020

Hemophilia is a relatively rare disease—there are about 25,000 severe cases in the United States—but when it strikes a patient, a family, a blood bank, or an attending physician who has never dealt with a case before, the impact can be devastating. Optimum treatment, of course, can be given in relatively large metropolitan treatment centers where the hematologist, the orthopedist, the physical therapist, and, if necessary, the psychiatrist and social worker can each handle his or her aspect of the disease. But the hemophiliacs, 40% of whom are born into families that do not expect them, do not and cannot always oblige by living near these treatment centers. Indeed, according to the National Heart and Lung Institute's blood resource studies of 1972, 59% of all American hemophiliacs are treated by physicians who have only one hemophiliac patient. And 90% of American hemophiliacs are treated by physicians who have only two

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