Compared with any other adult age group, depression is most prevalent among young adults aged 18 to 25 years in the US.1 Despite the increasing trajectory of depression in the past decade, young adults’ use of treatment for depression remains low.2 Untreated depression increases young adults’ risk for substance abuse, risky sexual behaviors, unemployment, and suicide.3 This study aimed to examine trends and patterns in young adults’ perceived reasons for not seeking treatment for depression.
This study used nationally representative data from the 2011-2019 National Survey on Drug Use and Health (NSDUH) for civilian, noninstitutionalized young adults aged 18 to 25 years.4 Young adults with a 12-month major depressive episode (MDE) based on Diagnostic and Statistical Manual of Mental Disorders (Fourth Edition) criteria were asked whether they had received any mental health treatment in the past year; those who responded “no” were further surveyed about reasons why they did not seek treatment. The sociodemographic variables that were examined included young adults’ age, sex, race and ethnicity, and annual household income. The institutional review board at RTI International approved the NSDUH data collection protocol, and verbal informed consent was obtained from each participant. This study followed the American Association for Public Opinion Research (AAPOR) reporting guideline for survey studies.5
Bivariate logistic regression analyses were first conducted to assess time changes in annual proportions of young adults who reported specific reasons for not seeking treatment for depression (0 = no; 1 = yes); survey year was the continuous independent variable. For reasons with statistically significant time changes, interaction effects between survey year and sociodemographic variables were further examined in respective bivariate regression models. Last, a series of multivariable logistic regression analyses were conducted to examine sociodemographic differences in participants’ reported reasons for not seeking treatment for depression, controlling for survey year, participants’ MDE-related severe functional impairment, and sampling weights.
All analyses were performed using R, version 4.0.3 (R Group for Statistical Computing). For the 2011-2019 NSDUH, the annual mean weighted interview response rates for adults aged 18 to 25 years ranged between 66.4% and 80.5%. All P values were from 2-sided tests and results were deemed statistically significant at P ≤ .05.
Between 2011 and 2019, 11 186 of 21 012 young adults with a 12-month MDE did not receive any treatment, among whom 6837 (61.1%) were women, 4349 (38.9%) were men, 4412 (39.4%) were aged 18 to 21 years, 6283 (56.2%) were White, 3309 (29.6%) had an annual household income of less than $20 000, and 6363 (56.8%) had MDE-related severe functional impairment. The sociodemographic distribution was largely consistent across survey years.
In 2019, the most-reported reasons by young adults for not seeking treatment for an MDE were cost (776 of 1552 [54.7%]; weighted percentage), not knowing where to go for services (572 of 1552 [37.8%]; weighted percentage), thought they could handle the problem without treatment (525 of 1552 [30.9%]; weighted percentage), and fear of being committed or having to take medicine (394 of 1552 [22.8%]; weighted percentage) (Table 1). From 2011 to 2019, an increasing number of young adults reported not knowing where to go for services, fear of being committed or having to take medicine, having inadequate insurance coverage for treatment, fear of negative effect on jobs, and having concerns about confidentiality. No significant interaction effects were identified, suggesting that these time changes were consistent by young adults’ sociodemographic variables.
Compared with White participants, Hispanic and Asian participants were more likely to report not knowing where to go for services (Hispanic participants: adjusted odds ratio [AOR], 1.57 [95% CI, 1.21-2.03]; Asian participants: AOR, 2.63 [1.68-4.11]), whereas Native American participants were more likely to report having no insurance coverage (AOR, 3.44 [95% CI, 1.05-11.24]) (Table 2). Hispanic participants were also more likely than White participants to report fear of being found out by others (AOR, 1.95 [95% CI, 1.38-2.76]). Female participants were less concerned than male participants about negative opinions of neighbors or communities (AOR, 0.65 [95% CI, 0.51-0.83]) or about being found out by others (AOR, 0.72 [95% CI, 0.54-0.96]).
Although this study is limited by potential social desirability bias based on self-reports, cost was consistently the most prominent barrier to seeking depression treatment among young adults from 2011 to 2019. In addition, young adults increasingly reported inadequate insurance coverage for mental health treatment. Since its implementation in 2014, the Medicaid expansion has reduced the rate of uninsured individuals and improved access to care for adults with depression.6 Immediate policy actions are needed, therefore, to close the Medicaid coverage gap, especially for Native American individuals. More outreach campaigns are also warranted to increase young adults’ awareness of local mental health services, particularly among Hispanic and Asian communities. Last, destigmatizing mental health treatment should be prioritized among young adults, with gender-specific engagement interventions for men.
Accepted for Publication: March 24, 2022.
Published: May 10, 2022. doi:10.1001/jamanetworkopen.2022.11393
Open Access: This is an open access article distributed under the terms of the CC-BY License. © 2022 Lu W et al. JAMA Network Open.
Corresponding Author: Wenhua Lu, PhD, Department of Community Health and Social Medicine, School of Medicine, The City University of New York, 160 Convent Ave, New York, NY 10031 (wlu1@med.cuny.edu).
Author Contributions: Dr Lu had full access to all of the data in the study and takes responsibility for the integrity of the data and the accuracy of the data analysis.
Concept and design: Lu, Bessaha.
Acquisition, analysis, or interpretation of data: Lu, Muñoz-Laboy.
Drafting of the manuscript: Lu, Muñoz-Laboy.
Critical revision of the manuscript for important intellectual content: All authors.
Statistical analysis: Lu.
Administrative, technical, or material support: Lu, Bessaha.
Supervision: Muñoz-Laboy.
Conflict of Interest Disclosures: None reported.
5.American Association for Public Opinion Research (AAPOR). Standard Definitions: Final Dispositions of Case Codes and Outcome Rates for Surveys. 8th ed. AAPOR; 2015:52-53.