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Special Article
May 2000

National Institutes of Health Consensus Conference: Tuberous Sclerosis Complex

Author Affiliations

Copyright 2000 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.2000

Arch Neurol. 2000;57(5):662-665. doi:10.1001/archneur.57.5.662

In July 1998, the National Institutes of Health sponsored a consensus conference of international experts to review the literature on tuberous sclerosis complex (TSC). First described in the 1800s, this multiorgan disease has wide-ranging effects on the body, including the brain, kidneys, eyes, and heart. Tuberous sclerosis affects an estimated 40,000 Americans and approximately 2 million people worldwide.1 The panel provided recommendations on revised diagnostic criteria and surveillance protocols for affected individuals.2 Areas for future research were highlighted.