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The National Institute on Deafness and Other Communication Disorders established the Hereditary Hearing Impairment Resource Registry (HHIRR) to become a national resource for the biomedical community in the study of genetic hearing impairment and deafness. The HHIRR has three major functions: to disseminate and collect information and to match families with scientists.
Dissemination information: The HHIRR publishes articles on topics dealing with hereditary deafness research. Articles written for professionals are found in the Advances in the Genetics of Deafness: A Bulletin of the HHIRR. Articles written for nonprofessionals are found in the Hereditary Deafness Newsletter of America. Reprints of articles are available as "Fact Sheets." Fact Sheet topics are available on-line at the WEB URL address listed below and through HealthTouch, found in pharmacies throughout the United States.
Collection of information: Demographic information is collected from hearing impaired (deaf) individuals by a survey found in our brochure (the
Ing PS. Hereditary Hearing Impairment. Arch Otolaryngol Head Neck Surg. 1995;121(12):1436. doi:10.1001/archotol.1995.01890120092022
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