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October 2014

Integrating Medical Plans Within Family Life

Author Affiliations
  • 1former chair, Family Advisory Council, Seattle Children’s Hospital

Copyright 2014 American Medical Association. All Rights Reserved. Applicable FARS/DFARS Restrictions Apply to Government Use.

JAMA Pediatr. 2014;168(10):891-892. doi:10.1001/jamapediatrics.2014.1031

Our daughter Zoe was born with a set of severe congenital heart defects that left her unable to survive without a heart transplant, which she received when only 5 weeks old. Infections, viruses, failure to thrive, transfusions, and many more complications required numerous hospital stays. She has received care in the neonatal intensive care unit, the cardiac intensive care unit, and the general inpatient unit. By age 2 years, she had been hospitalized 10 times and an additional 3 times in the last 5 years.