We appreciate Dr Cunningham's comments on item 14g in our survey of newborn screening programs1 and are surprised that public discussion has focused on this one question and obscured our central results. To paraphrase from the abstract, we found that counseling services vary greatly, no best practices are currently evident, and quality assurance for counseling is rare.
Farrell MH, Farrell PM. Is Public Health Ready for Genetics? An Unanswered Question—Reply. Arch Pediatr Adolesc Med. 2001;155(10):1175–1176. doi:https://doi.org/10.1001/archpedi.155.10.1175
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