I watch you hold her tiny, limp hand. She does not wrap her fingers around yours like babies her age would do. You run your hand over her wispy hair, but she does not look at you. She does not smile. A day has never passed that you have seen her whole face, absent tubes and tape. She is not normal, she is not healthy, and she never will be.
We have spent the past 5 months ordering tests, consulting the experts, and trying new medications. We have spent hours talking to you, explaining to you the prognosis, the options, and the plan. I know you have done your own research and spoken to your own consultants and even other parents whose children have the same disease. You are educated, dedicated, unyielding, and fierce. You are her mother.
Identify all potential conflicts of interest that might be relevant to your comment.
Conflicts of interest comprise financial interests, activities, and relationships within the past 3 years including but not limited to employment, affiliation, grants or funding, consultancies, honoraria or payment, speaker's bureaus, stock ownership or options, expert testimony, royalties, donation of medical equipment, or patents planned, pending, or issued.
Err on the side of full disclosure.
If you have no conflicts of interest, check "No potential conflicts of interest" in the box below. The information will be posted with your response.
Not all submitted comments are published. Please see our commenting policy for details.
Hirni K, Carter B. Hearing Others’ Perspectives When We Hear, “Do Everything!”. JAMA Pediatr. 2015;169(5):423–424. doi:10.1001/jamapediatrics.2014.3699
Browse and subscribe to JAMA Network podcasts!
Customize your JAMA Network experience by selecting one or more topics from the list below.
Create a personal account or sign in to: