We, as parent caregivers, write to you on behalf of 247 parents of children with chronic, complex, medical conditions from various locations across the United States. We are parent caregivers of a unique population of fun, bright, and talented children with incredibly complicated medical issues. Our children are unique; they do not follow a standard, 1-dimensional, format of care. They need constant, specialized, and coordinated care, and they rely on you to support their quality of life.
Carosella A, Snyder A, Ward E. What Parents of Children With Complex Medical Conditions Want Their Child’s Physicians to Understand. JAMA Pediatr. 2018;172(4):315–316. doi:10.1001/jamapediatrics.2017.3931
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