We, as parent caregivers, write to you on behalf of 247 parents of children with chronic, complex, medical conditions from various locations across the United States. We are parent caregivers of a unique population of fun, bright, and talented children with incredibly complicated medical issues. Our children are unique; they do not follow a standard, 1-dimensional, format of care. They need constant, specialized, and coordinated care, and they rely on you to support their quality of life.