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May 2004

Perspectives on Quality at the End of Life

Arch Pediatr Adolesc Med. 2004;158(5):415-418. doi:10.1001/archpedi.158.5.415

What constitutes excellent care for the dying and, ultimately, a "good" death? Defining quality indicators for pediatric palliative, end-of-life, and bereavement (P-EOL-B) care—indicators that measure both the quality of care processes (such as providing emotional and spiritual support) and the attainment of outcomes valued by patients and families (such as freedom from pain or dying in a place of one's own choosing)—is a crucial challenge in our efforts to improve the care for dying children and their families.1,2