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December 1973

Psychosocial Aspects of Cystic Fibrosis: A Review of the Literature

Author Affiliations

Rochester, NY
From the departments of pediatrics and psychiatry, University of Rochester (NY) Medical Center. Dr. Gayton is now with the BathBrunswick Mental Health Association, Bath, Me; Dr. Friedman is now with the Division of Child and Adolescent Services, Department of Psychiatry, University of Maryland School of Medicine, Baltimore.

Am J Dis Child. 1973;126(6):856-859. doi:10.1001/archpedi.1973.02110190698026

The first major study concerned with the psychosocial aspects of cystic fibrosis (CF) was conducted by Turk1 at the National Institutes of Health. This study examined the effects of CF on communication between family members and the interactions between husband and wife. The study also evaluated the presence or absence of significant social and financial stresses associated with the disease.

Twenty-five families (25 mothers, three fathers) completed a self-administered questionnaire which focused on the psychosocial consequences of having a child with cystic fibrosis. The CF children had a mean age of 7 years with a range from 3 months to 23 years. Results suggested a number of financial and social stresses in these families, including decreased time and energy available for leisure activities with the family, less time for self, increased concern over finances, less time alone with spouse, and decreased frequency of sexual relations. Respondents indicated, however, that