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April 1974

Down Syndrome: Informing the Parents: A Study of Parental Preferences

Author Affiliations

Rochester, NY
From the University of Rochester Medical Center, Rochester, NY. Dr. Gayton is now with the Bath-Brunswick Mental Health Association, Bath, Me.

Am J Dis Child. 1974;127(4):510-512. doi:10.1001/archpedi.1974.02110230056008

This study determined the actual experiences of 85 sets of parents when they were informed that their child had Down syndrome, and how they would have preferred this matter to have been handled. The survey revealed that the majority of parents preferred to be told as early as possible with both of them present. They also reported that they found it helpful when the physician provided them with reading materials, recommended they get in touch with other parents with a similar problem, encouraged them to return for support and advice, and referred them elsewhere for help.